Public attitudes regarding the use of residual newborn screening specimens for research.

Abstract

Our results show that the general public surveyed here was supportive of NBS and residual sample retention and research use. However, there was a clear preference for an informed permission process for parents regarding these activities.

Education about NBS was associated with a higher level of support and may be important to maintain public trust in these important programs.

Full Text

• DOI - Pediatrics (DOI)
• International Agency for Research on Cancer - Screening Group - full-text online
• HighWire Press - full-text online
• EBSCO - full-text online

Subjects

• Adult
• Aged
• Biomedical Research
• Blood Specimen Collection
• Blood Stains
• Female
• Focus Groups
• Health Education
• Humans
• Infant, Newborn
• Male
• Middle Aged
• Neonatal Screening
• Parental Consent
• Privacy
• Public Health
• Public Opinion
• Quality Assurance, Health Care
• United States

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Authors

• Jeffrey R Botkin
• Erin Rothwell
• Rebecca Anderson
• Louisa Stark
• Aaron Goldenberg
• Michelle Lewis
• Matthew Burbank
• Bob Wong

Publication date

2012-02-03

Journal

Language

Eng.

Copyright

Pediatrics

University of Utah, Salt Lake City, UT 84112, USA. jeffrey.botkin [at] hsc.utah.edu

Release reference

Pediatrics. 2012 Feb;129(2):231-8

Related books

• Books of Biomedical Research
• Books of Blood Specimen Collection
• Books of Blood Stains
• Books of Focus Groups
• Books of Health Education
• Books of Neonatal Screening
• Books of Parental Consent
• Books of Privacy
• Books of Public Health
• Books of Public Opinion
• Books of Quality Assurance, Health Care
• Books of United States